Mokhatlo oa Mekhatlo ea Kankere ea Sechaba (ACCC) Morero oa Kankere ea Lebese la Metastatic ke leano la thuto le sebetsanang le litlhoko tsa mantlha le litaba tsa basali le banna ba phelang le kankere ea matsoele. Sepheo se ka sehloohong sa ts'ebetso ena ke ho ntlafatsa phekolo le ts'ebetso ea kankere ea matsoele ea matsoele sebakeng sa sechaba. Avon Breast Cancer Crusade, Cancer Support Community, le Metastatic Breast Cancer Alliance ba arolelana litsebo le litsebo tsa bona joaloka balekane ba ACCC molemong ona, ka lithuso le tšehetso e fanoeng ke Pfizer Oncology.
"Project ACCC Metastatic Breast Cancer Project e bua ka ho toba ka tlhokahalo e khethiloeng e le karolo ea Kankere ea Bokhachane: Tlaleho ea Half Told -bohloeki ba ho hlahisa lipuisano tse atlehang haholo pakeng tsa lingaka le bakuli ba kankere ea matsoele," ho boletse Julia Perkins Smith, MD, North Amerika Litaba tsa Bongaka Moeta-pele, Pfizer Oncology. "Pfizer e ikemiselitse ka matla ho thusa ho finyella litlhoko tse ikhethang tsa sechaba sa MBC, 'me re thabile ho tšehetsa mosebetsi o mocha ACCC o etsang sebakeng sena. Joaloka ACCC, tšepo ea rona ke hore morero ona o tla thusa bakuli ba nang le MBC hore ba ntlafatse kutloisiso ea lefu la bona le ho ba le lentsoe le matla ho feta ha ba etsa liqeto. "
Mathata a puisano
Bakeng sa bakuli: Ho hlahlojoa ha kankere ea matsoele ea metastatic ho na le litaba tsa puisano tsa tlhaho; hangata ho utloisisoa hampe. Ka linako tse ling, esita le bakuli ba na le bothata ba ho utloisisa ha setsebi sa bona sa oncologist se bua le bona ka lefu la metastatic, tlhokahalo ea phekolo ea bophelo bohle, litla-morao tse lebelloang, le hore na lefu la bona le tla ama joang boleng ba bophelo le nako ea bophelo.
Qalong, bakuli ba bangata ba tsielehile ke ho hlahlojoa ha bona le seo ba se bolelloang; ba tsilatsila ho botsa lipotso. Leha bakuli ba ntse ba tsoela pele kalafo, bakuli ba bang ha ba arolelane tšabo le litho tsa sehlopha sa bona sa tlhokomelo kapa ba kōpa thuso ea maikutlo eo ba e hlokang. Hangata ba koetlisa lipuisano tsa bona le setsebi sa bongaka ba litsebi tsa bongaka ho laola litla-morao, le katleho ea phekolo ea joale.
Ho ea ka tlaleho ea lipatlisiso tse entsoeng ke Cancer Support Community, bongata ba bakuli ba kankere ea matsoele ba lefu la matsoele ba tlaleha hore ba buisana hantle le sehlopha sa bona sa tlhokomelo ea bophelo. Leha ho le joalo bakuli ba babeli ho ba 5 ba itse ha baa ka ba bua ka mathata a tebileng ka bophelo ba bona ba maikutlo, phekolo, matšoao le boleng ba bophelo.
"Boitsebiso ba motho ka mong ka kankere ea matsoele ke lefu la bohlokoa haholo bakeng sa ho kenya letsoho litabeng tsa ho etsa liqeto. Boitsebiso bo boetse bo phetha karolo ea bohlokoa ea maikutlo ho fokotsa ho hloka botsitso, ho hloka taolo le mahlomola. Leha ho le joalo, bakuli ba bangata ha ba fumane boitsebiso bo lekaneng ho lihlopha tsa bona tsa tlhokomelo ea bophelo; kutloisiso ea bona ea mofuta oa lefu lena le lipakane tsa kalafo hangata e futsanehile; ba bangata ba lumela hore ba tla fola. Meeli ea nako le lisebelisoa litloaelong tse phathahaneng tsa oncology li ka etsa hore ho be le mekhoa e fokolang ea mokuli-ngaka, ho kenyelletsa le tsela e le 'ngoe ea puisano ea "ngaka-ea tseba hantle". Bakuli ba boetse ba tlaleha pherekano ka mehloli e nepahetseng ea tlhahisoleseding. "Ho tlalehoe Katherine Crawford-Gray, Mookameli oa Metastatic Breast Cancer Alliance.
Bakeng sa sechaba: Le hoja ho tsebahala haholo ka kankere ea matsoele ka lebaka la melaetsa e hlahang TV le seea-le-moeeng, 'me mecheng ea khatiso, melaetsa ena hangata e lebisa tlhokomelo ho kankere ea matsoele ea pele , eseng Mothating oa IV, kankere ea matsoele.
Leha ho le joalo, ho hakanngoa hore palo ea bakuli ba phelang le mafu a metastatic e pakeng tsa 150 000 le 250,000 US selemo le selemo, bakuli ba 40,000 ba metastatic ba shoa lefu lena. Hoo e ka bang karolo ea 6-10 lekholong ea lik'hemik'hale tsohle tse sa tsoa fumanoa tsa kankere ea matsoele li na le metastatic. Pakeng tsa karolo ea 20-30 lekholong ea lik'hemik'hale tsa matsoele e tla ba metastatic, e tla ba lilemo tse 5, 10, 15+ tse latelang phekolo ea kankere ea matsoele ea pele.
Kankere ea matsoele ea metastatic ke seteishene se tsoetseng pele ka ho fetisisa sa kankere ea matsoele, 'me kankere e hasane ka ntle ho sefuba ho litho tse ling tse hōle tse kang matšoafo, sebete, boko le bone. Le hoja e ka phekoloa, ha e phekolehe.
Ha e lumellane le melaetsa ea "ikutloa hantle" mabapi le kankere ea matsoele ea ho lula e atisa ho fetisetsoa ho thelevishene, seea-le-moeeng le mochine oa khatiso.
Kaha litsebi tsa metastatic li phela moetlong oo ho oona ho nahanoang hore ho na le phello e tloaelehileng ka mor'a ho phekola, ba bangata ba nang le mafu a metastatic ba ikutloa eka ke ka ntle ho sechaba sa kankere ea matsoele. Hangata ba botsoa ke malapa le metsoalle ho hlalosa hore na ke hobane'ng ha ba lokela ho ba phekolo bophelo bohle ba bona.
Ho ea ka Mokhatlo oa Metastatic Breast Cancer (MBC) Alliance, molaetsa oa phatlalatsa mabapi le kankere ea matsoele le phekolo ea kankere ea matsoele o atile haholo hoo batho ba fumanoang ba Mothating oa IV ka kankere ea matsoele e ka hlajoang ke maikutlo a hore ba hlōlehile ho hlokomela ka bobona kapa ho hlahlojoa selemo le selemo.
Tlhaloso ea morero oa Canast Metastatic Breast Breast
Marianne Gandee, Motlatsi oa Motlatsi, Thuto ea Mofani, ACCC, o hlalosa morero ona, "Lenane la rona la thuto ea kankere ea letsoho la methapo le batla ho matlafatsa bakuli ba MBC ka ho fana ka lisebelisoa le lisebelisuoa tsa tlhokomelo ea bophelo bo botle ho rarolla likheo tlhokomelong le ho ntlafatsa puisano pakeng tsa bakuli le bafani ba lihlahisoa. "
Morero o tla fana ka:
- Sebaka se etela libaka tse nang le mananeo a bontšang mekhoa e sebetsang ea phekolo le taolo ea mokuli.
- Ho arolelana tlhahisoleseding mabapi le boemo ba hona joale ba phekolo ea kankere ea matsoele le ea taolo ea mokuli.
- Leqephe la websaete le app
- Lisebelisoa tsa thuto tse loketseng ho sebelisoa ke litho tsohle tsa sehlopha sa tlhokomelo ea kankere.
- Buka ea mosebetsi mabapi le mekhoa e sebetsang ea ho hlokomela bakuli ba kankere ea matsoele.
- Ho fihlella ho Ngolisi ea Ketsahalo ea Kankere ea Kankere ea Community Cancer: Canast Metastatic Breast Cancer.
- Ka 2007, nts'etsopele ea merero e sebetsang ea ho thusa mananeo a litho tsa ACCC ho ntlafatsa kalafo le tsamaiso ea basali le banna ba nang le kankere ea matsoele.
Mokhatlo oa Mekhatlo ea Kankere ea Sechaba, mokhatlo oa sechaba oa ts'ebeliso le mokhatlo oa thuto ho tloha ka 1974, ke seboka sa ho sebetsana le litaba tse amang mananeo a kankere ea sechaba naheng ka bophara. Ka hona, ACCC e ka sebelisa lisebelisoa tsa eona le tsa balekane ba eona Lefatšeng la Methapo ea Methapo ea Methapo ea ho finyella le ho thusa litho tsa lona ho sebetsana le litlhoko tsa puisano tsa bakuli ba nang le kankere ea matsoele. Litho li kenyelletsa litsebi tse fetang 22 000 tsa tlhokomelo ea kankere ho tloha lipetlele tse 2 000 le mekhoa naheng eohle. Litsebi tsa li-oncologists li tšoara batho ba fetang 75 lekholong ba bakuli ba kankere.
ACCC Mookameli Jennie R. Crews, MD, MMM, FACP o itse, "Ha re ntse re ikitlaelletsa ho fana ka tlhokomelo e ikemetseng, re tlameha ho matlafatsa bakuli ho nka karolo ka botlalo lipuisanong tse peli le bafani ba bona." The Project Metastatic Breast Cancer Project ke e etselitsoe ho etsa joalo ka ho eketsa moqoqo oa kankere oa matsoele oa hona joale ho rarolla likheo litabeng tsa puisano pakeng tsa lefu la pele le la methapo; le ho ntlafatsa puisano e mabapi le phekolo le ts'ebetso ea kankere ea matsoele ea metastatic sebakeng sa sechaba sa incology.
Mesebetsi ea Bo-mphato ho Mosebetsi oa Kankere ea Lebese la Metastatic
"Khanyetso ea Kankere ea Avon Breast Cancer ke ho ithorisa ho fana ka leseli le hlakileng ka litlhoko tse khethehileng tsa bakuli ba MBC le malapa a bona le ho ntlafatsa bokhoni ba kankere ea matsoele e le hore ho finyelle litlhoko tsena, "ho boletse Carolyn Ricci, Mookameli oa Lenaneo, Avon Breast Cancer Crusade.
"Metastatic Breast Cancer Alliance e lumela hore likamano, tse kang tseo re nang le tsona le Mokhatlo oa Likhasello tsa Kankere tsa Mantlha bakeng sa morero oa tsona oa kankere ea matsoele, li bohlokoa haholo haeba re ka susumetsa liphetoho tse kholo tse lebisang ho ntlafatsa boleng le bongata ba bophelo bakeng sa batho ba phelang le kankere ea matsoele ea metastatic. Karolo ea rona ea ho sebetsa le ACCC ke ho tlisa bokhoni ba litho tsa rona ho lipatlisiso le nts'etsopele ea merero. E 'ngoe ea melemo ea Alliance ke hore re tla utloisisa hantle litlhoko tsa puisano tsa litliniki tsa kankere ea sechaba' me ka tšepo re khone ho ba le karolo e kholo ea ho sebetsana le litsi ho finyella litlhoko tsena.
Alliance e laetse Dr. Corrine Ellsworth Beaumont hore a batlisise meeli ea puisano e teng le ho fana ka litsela tse ncha tsa ho li rarolla. Ka lebaka la Karolo ea 1 ea lipatlisiso tsena, re ntse re hlahloba Setsi sa Thuto ea puisano se thehiloeng ponong ea pono e nang le litemana tse nyenyane. Tšebelisano ea rona le ACCC metseng ea bona ea Metastatic Breast Cancer Project e thusa hore litho tsa bona li be le tsebo ea ho fumana mokhoa ona o mocha oa ho tseba le ho fihleloa habonolo. "- Katherine Crawford-Gray, Mookameli oa Metastatic Breast Cancer Alliance.
Registry Cancer Experience Registry, e leng eona feela ngoliso ea mofuta oa eona, e lumella bakuli le bahlokomeli ho arolelana liphihlelo tsa bona tse ikhethang ho thusa ho ntlafatsa boleng ba bophelo ho batho ba nang le lefu la kankere. Karolo e khethehileng ea Registry e nehetsoe ho utloisisa litlhoko tsa sechaba le tsa maikutlo tsa batho ba phelang le kankere ea matsoele. Boitsebiso bo tlohang ho tswa ho Registry bo tla fana ka baratuoa ba mekhoa e metle ea phekolo ea mathata a amanang le kankere ea matsoele ea 'mele. Liphuputso tsena li tla thusa ntlafatso ea lisebelisoa le lisebelisoa le ho thusa ho tsoela pele ho hlokomela bakuli, "ho boletse Joanne Buzaglo, PhD, Motlatsi oa Motlatsi oa Mopresidente, Setsi sa Lipatlisiso le Koetliso sa Cancer Support Community.
Lentsoe le Tsoang ho
Haeba o na le kankere ea matsoele, o hloka le sehlopha sa tlhokomelo ea kankere se bulehileng ho arabela lipotso tsa hau mme o nka nako ea ho mamela kamoo u ikutloang kateng. Haeba u sa tsoa fumanoa, ntle le hore u be le kamano e khotsofatsang le oncologist ea ileng a laola phekolo ea hau bakeng sa kankere ea pele ea matsoele, u tla hloka ho fumana ngaka ea oncologist. Ke khopolo e ntle ho kopana le ba oncologists ba babeli kapa ho feta pele u khetha hore na ke mang ea tla laola tlhokomelo ea hau e tsoelang pele.
Ntle le ho bua ka moralo oa hau oa phekolo, liboka tsena li tla u fa monyetla oa ho tseba boemo ba hau ba matšeliso le e mong le e mong oa oncologist kaha e tla ba karolo ea bohlokoa ea tlhokomelo ea hau. U lokela ho ikutloa hore u ka bua le oncologist ea hau ea bongaka le litho tse ling tsa sehlopha sa tlhokomelo ea hau mabapi le mathata leha e le afe a amehang boleng ba bophelo ba hau.
Ho kopana le sehlopha sa ts'ehetso sa bakuli ba kankere ea matsoele e tla thusa ho fokotsa ho itšehla thajana eo u ka 'nang ua ikutloa ka eona. E tla u fa monyetla oa ho arolelana le ba bang ba ka lumellanang le seo u leng ho sona.
Ho kenyeletsa karolo ea Keresemese ea Tlaleho ea Kankere ea basali le banna ba phelang le lefu la sefuba ke mokhoa o motle oa ho arolelana liphihlelo tsa hau, lisebelisuoa tsa ho fihlella, le ho ithuta ho ba bang ba nang le kankere ea matsoele. E na le bolokolohi, e le lekunutu ebile e fumaneha ho mang kapa mang ea fumanoeng a e-na le kankere kapa ke mohlokomeli oa mokuli oa kankere.
> Mehloli:
> ACCC-Launches-Initiative-To-Address-Communications-Mathata-A Talimane le-Metastatic-Mokuli-Kankere ea Kankere, Tlaleho ea Litaba, ka 2016
> MBC Alliance. Ho Fetola Sebaka sa Batho ba phelang le kankere ea matsoele ea Metastatic. Kankere ea Breast Metastatic Bothata ba Lefatše: Tlaleho ea Lipatlisiso, October 2014,
> In-Office Ethnographic Study, e tšehetsoeng ke Pfizer Oncology, 2014