Fibromyalgia e na le tsela e telele ea ho etsa lipatlisiso, mekhoa ea phekolo , tlhatlhobo le tlhokomeliso ea sechaba. Le hoja mekhatlo ea lipatlisiso, ka bobeli le ea sechaba, e bohlokoa bakeng sa tsoelo-pele ea rona, hase bona feela ba bapalang tšimong.
Mekhatlo e fanang ka mohau e sebetsa ka thata ka ntle ho setšoantšo 'me sechabeng e le ho tsoela pele ho etsa lipatlisiso le ho lemoha. Lipakane tsa bona tse phahameng ke ho re thusa kaofela ha rona ka boemo bona bo rarahaneng le bo fokolisang ho tsamaisa bophelo bo ntlafetseng. Lihlopha tse holimo tsa li-fibromyalgia tsa US le tse ling tse tsoang lefatšeng lohle li thathamisitsoe mona e le hore u ka ithuta ho eketsehileng ka lihlopha tsena tsa bohlokoa le mosebetsi o boima oo ba o etsang molemong oa rona.
Mokhatlo oa Sechaba oa Fibromyalgia
Mokhatlo oa Sechaba oa Fibromyalgia (NFA) ke mohala o tsebahalang ka ho fetisisa oa fibromyalgia US. E bile sesosa se seholo sa liketsahalo tsa letsatsi la mahlano tsa letsatsi la mahlatsi la fibromyalgia ho pholletsa le naha ka lilemo tse fetang 20. E boetse e hatisitse makasine ea Fibromyalgia AWARE hammoho le ho fana ka liboka tsa thuto.
Ho latela websaeteng ea NFA, mokhatlo o "thusitse ho fetola maikutlo le kutloisiso ea hore na ho joang ho phela le FM." Websaeteng ea eona e fana ka boitsebiso bo bongata boemong boo hammoho le lenaneo le tsoelang pele la thuto ea bongaka bakeng sa lingaka le bahlokomeli ba bang ba phekolo ea phekolo ea fibromyalgia.
Lintlha tse potlakileng ho NFA:
- E Thehiloe: 1997
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Orange, California
Lisebelisoa tsa hau:
- Litho tsa mahala li kenyelletsa eNewsletters, lipontšo tsa thuto tsa Inthaneteng, litlhahiso tsa lipatlisiso, tlhahisoleseding mabapi le liphuputso tse batlang barupeluoa, le ho theola lintho tse ling ka lebenkeleng la NFA le holimo.
Litsela tsa ho kenya letsoho:
- Fana ka chelete ka PayPal
- Reka lihlahisoa tsa thuto le tsebiso ho lebenkeleng la inthanete
- Bōpa chelete e ngata
- Thuso ka ho kenya chelete le boiteko ba ho lemoha, ho kenyeletsa le ho fana ka ketsahalo ea letsatsi la Labobeli le liketsahalo tsa letsatsi la tlhokomeliso
- Khetha Amazon Nmile NFA
Fibromyalgia Coalition International
Websaeteng ea eona, Fibromyalgia Coalition International (FCI) e re e batla ho ba "lebenkele la tšepo bakeng sa batho ba limilione ba FM / CFS lefats'eng lohle." E na le likopano le liketsahalo tse ling tsa thuto Kansas City 'me li lebisa tlhokomelo e khethehileng litseleng tse se nang meriana, tse kang lijo, tse tšehetsoang ke lipatlisiso tsa bongaka.
Lintlha tse potlakileng ho FCI:
- E Thehiloe: 2000
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Mission, Kansas
Polelo ea sepheo:
Sepheo sa FCI ke ho fa motho e mong le e mong ea nang le lefu la fibromyalgia le la mokhathala oa mafu a sa foleng ka tšepo ka lipatlisiso tse ngata le ka tlaleho ea litlhare tsa tlhaho, tse tiisitsoeng le tse sebetsang tse shebaneng le lisosa tsa motheo.
Lisebelisoa tsa hau:
- Tlaleho ea lihlopha tsa ts'ehetso ea fibromyalgia
- Tlaleho ea basebetsi ba tlhokomelo ea bophelo ba fibromyalgia
Litsela tsa ho kenya letsoho:
- Reka libuka, li-CD, le lihlahisoa tsa tsebo ka lebenkele la Inthaneteng
- Menehelo ea chelete ea nako e le 'ngoe kapa e tsoelang pele
- Ho fana ka Sebaka sa Mosebetsi
- Khetha FCI ho Amazon Smile
National Fibromyalgia & Chronic Pain Association
Mokhatlo oa Sechaba oa Fibromyalgia & Chronic Pain Association (NFMCPA) o re sepheo sa oona ke ho khothaletsa ho hlahlojoa kapele, ho khanna lipatlisiso tsa saense bakeng sa phekolo, le ho etsa lipatlisiso ka mekhoa e loketseng, e fumanehang, le e theko e tlaase bakeng sa fibromyalgia. E hlophisa le ho khothalletsa liketsahalo tsa letsatsi la ts'ebeliso ea letsatsi la mantsiboea le la 12 le ho fana ka tlhompho le lerako la mokete le libukeng tsa mohopolo.
Lintlha tse potlakileng ho NFMCPA:
- E Thehiloe: 2008 (joaloka CURE FM, e ile ea fetoha NFMCPA ka 2010)
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Logan, Utah
Polelo ea sepheo:
Mokhatlo oa National Fibromyalgia & Chronic Pain Association o kopanya bakuli, baetsi ba melao, le litšebeletso tsa bophelo bo botle, bongaka le tsa saense ho fetola bophelo ka ho tšehetsa pono, ho buella, ho etsa lipatlisiso le thuto ea fibromyalgia le maloetse a sa foleng a sa foleng. E boetse e fana ka koranta ea lipatlisiso tse ncha le bobuelli.
Lisebelisoa tsa hau:
- Lethathamo la mehloli ea bokooa le litaba tsa mosebetsi
- Lethathamo la lisebelisoa bakeng sa litaba tsa baholo
- Lethathamo la lichelete bakeng sa batho ba kulang ba sa foleng
- Articulos en Espanol
Litsela tsa ho kenya letsoho:
- Fana ka chelete
- Reka li-t-shirts kapa lisebelisoa ho tloha lebenkeleng la Inthanete
- Khetha NFMCPA ho Amazon Smile
National Fibromyalgia Partnership, Inc.
Sepheo sa Sechaba sa Fibromyalgia Partnership (NFP) ke ho jala tlhahisoleseling le tlhokomeliso ea fibromyalgia hammoho le ho kopanya batho ba nang le boemo bona ho ea ho lits'ebeletso tsa molao, tsa lichelete le tse ling. E phatlalatsa koranta ea kotara e bitsoang Fibromyalgia Frontiers hape e fana ka tlhahisoleseding mabapi le lithuto tse batlang barupeluoa.
Lintlha tse potlakileng ka NFP:
- E Thehiloe: 1992
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Linden, Virginia
Polelo ea sepheo:
Ho etsa litlhaloso tsa meriana, tlhahiso ea lits'ebeletso tsa boleng ba fibromyalgia e fumanehang ho litho tsa rona, litsebi tsa bophelo bo botle, le sechaba ka kakaretso.
Lisebelisoa tsa hau:
- Tlhahisoleseding mabapi le lefu la bohloko la myofascial (boemo bo tloaelehileng bo qobelloang)
- Boitsebiso litšebeletsong tsa lichelete le tsa sechaba
- Lethathamo la lisebelisoa bakeng sa banna le bana ba nang le fibromyalgia
- Articulos en Espanol
American Chronic Pain Association
Mokhatlo oa American Chronic Pain (ACPA) o fana ka "ts'ehetso ea lithaka le thuto ka tsebo ea ho laola batho ba nang le bohloko, ba lelapa le metsoalle, le litsebi tsa bophelo bo botle." E thusitse ho theha lihlopha tse 'maloa tsa tšehetso tsa ACPA US, Canada, Great Britain le linaheng tse ling.
Le hoja e se mokhatlo o hlophisitsoeng oa fibromyalgia, batho ba nang le fibromyalgia ba ka rua molemo ho lihlopha tsa ts'ehetso, tlhahisoleseding le bobuelli. E boetse e na le koranta e bitsoang The Chronicle.
Lintlha tse potlakileng ho ACPA:
- E Thehiloe: 1980
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Pittsburgh, Pennsylvania
Lisebelisoa tsa hau:
- Lethathamo la lihlopha tsa tšehetso tse sa feleng
- Qala sehlopha sa ts'ehetso sebakeng sa heno
- Tlhahisoleseding ka maemo a mangata a bohloko, phekolo le lisebelisoa tsa ho laola bohloko
Litsela tsa ho kenya letsoho:
- Fana ka chelete ka PayPal
Mekhatlo ea Machaba
Ka ntle ho US, mekhatlo e mengata ea liphallelo e sebetsa ka thata ho ntlafatsa bophelo ba batho ba nang le boemo bona. Tse ling tsa tsona ke:
- Mokhatlo oa Machaba oa Machapa
- European Network of Fibromyalgia Associations
- Fundacio ka Fibromialgia ke Fatiga Cronica (Spain)
- AFIBROM (Spain)
- Fibromyalgia Action UK
Lentsoe le Tsoang ho
Bakeng sa ba khonang ho fana ka monehelo, u ka fumana motho ea amohelehang ka ho fana ka seatla se bulehileng. Bakeng sa ba sitoang, mohlomong u ka fumana litsela tse ling tsa ho thusa kapa ho khothaletsa mekhatlo ena. Ho sa tsotellehe hore na u ka etsa'ng, u ka rua molemo ka ho toba boitsebiso le litšebeletso tseo ba fanang ka tsona, ho phaella molemong o sa tobang oo bohle re o fumanang boitekong ba bona.
Ho feta moo, menehelo ea mekhatlo e nang le melemo e kang ena e ka fana ka limpho tse kholo bakeng sa batho ba phelang ba sa foleng kapa ba ka ba mokhoa oa ho hopola motho ea loantšang fibromyalgia nakong ea bophelo ba bona. U ka boela oa ngola menehelo ea mohau ho thato ea hau. Empa, pele o fana ka mokhatlo ofe kapa ofe o thusang, etsa bonnete ba hore o etsa lipatlisiso e le hore u tsebe chelete ea hao e hlile e sebelisoa kamoo u batlang hore e be kateng.