Ho sa tsotellehe hore na u re ke lefu le sa foleng la mokhathala, myalgic encephalomyelitis, ME / CFS, kapa CFIDS, lefu lena le hloka lipatlisiso bakeng sa phekolo e nepahetseng le ho hlahlojoa habonolo hammoho le tlhokomeliso ea sechaba le ho amoheloa. Lihlopha tsa lipatlisiso ke tsa bohlokoa ho lipakane tsena, leha ho le joalo li na le thuso ho tsoa mekhatlo e meng ea bohlokoa e thusang batho ba thusang. Mekhatlo e joalo, e thathamisitsoeng ka tlaase, e sebetse ka mafolofolo ho ntšetsa pele lipatlisiso le tlhokomeliso ka sepheo sa ho thusa ba nang le lefu lena le senyang ho phela bophelo bo molemo.
Mokhatlo oa Machaba oa Mokhathala o sa Feleng oa Syndrome / Myalgic Encephalomyelitis
International Association for Chronic Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS / ME) e hlokomela hore ke sehlopha se seholo ka ho fetisisa sa machaba sa tlhokomelo ea bophelo se hlokometsoeng tlhokomelo le batho ba nang le ME / CFS. E khothalletsa ho fokotsa lichelete tsa 'muso, meputso ea ho fana ka chelete, le ho ba le likopano. Hape, e phatlalatsa libukana tse 'maloa ka selemo' me e tšehetsa koranta e hlahlobisitsoeng ke lithaka Fatigue: Biomedicine, Health, le Behavior .
IACFS / ME e fana ka litokelo ho lingaka le bafani ba bang ba ba fang monyetla oa ho fumana koranta ea bona hammoho le litefiso tse theoleloang likopanong tsa mokhatlo. Bakeng sa litsebi tsa bongaka, litho tsa tšehetso tse nang le melemo e tšoanang li fumaneha.
Lintlha tse potlakileng ho IACFS / ME:
- E Thehiloe: 1990 (e le IACFS; ME e ile ea eketsoa ka 2005)
- Sebaka sa mohau: Mokhatlo oa Oklahoma o se nang phaello, 501 (c) 3 e se nang phaello
- Sebaka: Bethesda, Maryland
Polelo ea sepheo:
Mosebetsi oa IACFS / ME ke ho khothaletsa, ho khothaletsa le ho hokahanya phapanyetsano ea maikutlo a amanang le CFS, ME, le lipatlisiso tsa fibromyalgia (FM), tlhokomelo ea bakuli le phekolo. Ho phaella moo, IACFS / ME nako le nako e hlahloba lipatlisiso tsa kajeno, lingoliloeng tsa phekolo, le litlaleho tsa mecha ea phatlalatso molemong oa bo-rasaense, lingaka le bakuli. IACFS / ME e boetse e khanna le / kapa e kenya letsoho likopanong tsa saense tsa naha, tsa naha le tsa machaba e le hore ho ntlafatsoe le ho hlahloba lipatlisiso tse ncha le ho khothaletsa liphuputso tsa morao-rao le mesebetsi ea kopano ho ntlafatsa tsebo ea saense le tsa bongaka mabapi le mafu ana.
Lisebelisoa tsa hau:
- Litho tsa setsebi le tse sa rutehang
- Boitsebiso le maikutlo ho patlisiso
- Lethathamo la liketsahalo le liphatlalatso mabapi le lipatlisiso le lichelete
Litsela tsa ho kenya letsoho:
- Fana ka chelete inthaneteng
- Fana ka chelete ka poso
Mokhatlo oa Sechaba oa CFIDS
CFIDS e ne e le lebitso le tloaelehileng bakeng sa boemo bona pele ME / CFS e tsebahala. E emetse "mokhathala o sa foleng le lefu la ho itšireletsa mafung."
Lipakane tsa Sechaba sa CFIDS ke ho thusa ho lefella lipatlisiso ka lebaka la sesosa le kalafo ea lefu lena 'me, qetellong, ho thusa ho fumana phekolo. E boetse e sebetsa ho fana ka tlhahisoleseding, thuto le ts'ehetso ho batho ba nang le ME / CFS.
Ho ea ka marang-rang ea eona, mokhatlo ona o fetela feela ka lithuso tsa lichelete ka ho cheka lintho tse fetileng tse sa tsejoang kapa ho fumana bafuputsi ba nang le tsebo e nepahetseng le ho tšehetsa mosebetsi oa bona libakeng tsena. E sebetsa ka ho feletseng ke baithaopi 'me, hammoho le ME / CFS, e khothalletsa lipatlisiso ho maemo a amanang, ho kenyelletsa le Gulf War ho kula le multiple chemical sensitivity.
Lintlha tse potlakileng ho Mokhatlo oa Sechaba oa CFIDS:
- E Thehiloe: 1997
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Needham, Massachusettes
Lisebelisoa tsa hau:
- Botho bo theko e tlaase bo na le likaranta tse peli tsa selemo le selemo
- Lihlooho tsa tlhahisoleseding
- Lenane la Sehopotso
- Lethathamo la mantsoe a bongaka a Japane a bongaka
Litsela tsa ho kenya letsoho:
- Fana ka chelete inthaneteng
- Eba setho
Setsi sa Tsebo ea ME-CFS
Setsi sa Tsebo ea ME-CFS se fane ka boitsebiso bo bongata le lisebelisuoa ka har'a marang-rang ea lona ka sepheo sa ho thusa batho ba nang le ME / CFS feela, empa le mafu a amanang le fibromyalgia le lefu la Gulf War.
Lintlha tse potlakileng setsing sa tsebo ea ME-CFS:
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Loxahatchee, Florida
Polelo ea sepheo:
Sepheo sa rona ke ho fa ba nang le mokhathala o matla, myalgic encephalomyelitis / chronic fatigue syndrome (ME / CFS), fibromyalgia (FM), le maloetse a amanang le mefuta e fapaneng ea lits'ebeletso tse tsoang lefats'eng lohle tseo ho ka sebetsanoang le tsona tse rarahaneng, hangata, maemo a sa utloisisoeng hantle.
Lisebelisoa tsa hau:
- Lihlooho tsa tlhahisoleseding
- Lethathamo la lihlopha tsa tšehetso ho pholletsa le naha
- Lethathamo la lisebelisuoa tse kenyelletsang bafani ba tlhokomelo ea bophelo le babuelli ba tsoang naheng ka bophara
- Laebrari e kholo ea livideo
Litsela tsa ho kenya letsoho:
- Fana ka chelete ka PayPal
- Reka lebenkeleng la inthanete
Lokisa ME / CFS Initiative
Mohato oa Solve ME / CFS Initiative (SMCI) o re "o sebetsa ho potlakisa ho fumanoa ha phekolo e sireletsehileng le e sebetsang 'me o loanela ho eketseha ka mabifi ha lichelete ho ea ho phekolo." E boloka buka ea biobank le ea mokuli e thusang hore barupeluoa le bafuputsi ba kopane ho etsa lipatlisiso ka tsela e bonolo le e theko e tlase bakeng sa bafuputsi holim'a ho etsa lintlha ho tloha litsong tse fumanehang bakeng sa lithuto tse ngata.
Lipakane tsa SMCI ke ho ntšetsa pele patlisiso ka ho lemoha kapele ea lefu lena, ho fumana liteko tse ntlafetseng, le ho etsa phekolo e atlehang haholoanyane. Mokhatlo ona o lebisitse tlhokomelo haholo ho li-bioenergetics, ho itšireletsa mafung le ho ruruha, le biology ea neuroendocrine. Hape, e fana ka chelete kamehla ho bafuputsi ba sebetsang libakeng tsena.
Lintlha tse potlakileng ho SMCI:
- E Thehiloe: 1987
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Los Angeles, California
Polelo ea sepheo:
Sepheo sa rona ke ho etsa hore ME / CFS e utloisisehe haholo, e hlahlojoe, mme e phekoloe. Re tla etsa sena ka ho ts'oetsa lipatlisiso tse amehang, tse nang le mamello e le hore ho fumanoe pele, ho hlahlojoa sepheo, le kalafo e sebetsang ea ME / CFS ka ho atolosa lichelete tsa sechaba, tsa boinotšing le tsa khoebo.
Lisebelisoa tsa hau:
- Lihlooho tsa tlhahisoleseding bakeng sa bakuli, metsoalle le lelapa, bafuputsi le bafani ba tlhokomelo ea bophelo
- Lethathamo la liphuputso tsa lithuto
- Webinars
- Ikopanye le bobuelli
- Lethathamo la litaba
Litsela tsa ho kenya letsoho:
- Fana ka chelete ka inthaneteng kapa ka poso
Lipatlisiso tsa Simmaron
Simmaron Lipatlisiso li lebisa tlhokomelo lipatlisisong tsa lifofane-liphuputso tse nyenyane tse bontšang hore mefuta e meng ea lipatlisiso e lokela ho phehella-e ka 'nang ea khahloa ke mekhatlo ea thuto, lithuso tsa' muso le thahasello ho lik'hamphani tsa meriana ho ea lihloohong tse joalo.
Ho feta moo, Simmaron e na le sebaka sa lihlahisoa tsa bafuputsi hammoho le tlhahiso ea batho ba fetang 1 000 ba nang le ME / CFS. E boetse e sebelisana le bafuputsi ba ME / CFS lefats'eng lohle.
Lintlha tse potlakileng ho Lipatlisiso tsa Simmaron:
- Boemo ba mohau: 501 (c) 3 e se nang phaello
- Sebaka: Incline Village, Nevada
Tlhaloso ea Lithuto:
Ho khanna lithuto tsa lipalangoang tse etsang karolo ea bohlokoa ho hlahlojoa, ho alafoa le kutloisiso ea CFS / ME le mafu a mang a kotsi.
Lisebelisoa tsa hau:
- Libuka tsa ME / CFS tse tsoang ho mokhatlo le baeletsi ba eona
- Lipatlisiso tse amanang le lipatlisiso
Litsela tsa ho kenya letsoho:
- Fana ka chelete inthaneteng
Libaka le Mekhatlo ea Machaba
Mekhatlo e mengata ea ME / CFS e sebeletsa sechaba sa motse ho pholletsa le US le ho potoloha lefats'e. Bakeng sa lenane le qaqileng la bona, etela Mekhatlo ea Chronic Chronic Fatigue Syndrome le Myalgic Encephalomyelitis.
Lentsoe le Tsoang ho
Ho etsa monehelo ho mekhatlo e kang tsena tsa liphallelo e ka ba mpho e babatsehang ho batho ba nang le ME / CFS kapa ba loana le lefu lena nakong ea bophelo ba bona. Menehelo ea mohau e ka boela ea ngoloa thatoeng ea hau. Pele o fana ka chelete ho thuso leha e le efe, leha ho le joalo, etsa bonnete ba hore o etsa lipatlisiso ho etsa bonnete ba hore monehelo oa hau o sebelisoa joang.
Haeba u har'a ba nang le tokelo ea ho fana, lethathamo lena le ka u thusa hore u fumane sebaka sa bohlokoa ho tšehetsa. Bakeng sa ba sa khoneng ho fana ka chelete, o ka fumana mekhoa e meng ho thusa kapa ho khothaletsa lihlopha tsena. Ka tsela efe kapa efe, u ka khona ho ithuta ho bona le ho rua molemo ho thepa eo ba e fang.